Copyright © 2004-2009 Mypreemielife.Com. All rights reserved.
Webmaster: Tiffany N. Downing
APRIL 30, 2009
Well Im sure most of you have heard about the SWINE FlU that has been going around, and how we (The USA) had our first death as a result of this extremely spreadable Flu Strain. We have been very cautious with Taylor on everything that she does. Since 90% of her mobility is still on the floor (crawling) we make sure that we wash her face & hands as much as we can... after all you can't be to careful!
Taylor is going to get her Botox injections next Friday in Kansas City, and of course just like clockwork she has a runny nose, and a head cold! I think that Mr. Cold Bug has a radar when it comes to Taylor having botox.
I started this website in 2004 to share Taylor's complications, successes and journey through life as a micro-preemie. I have also added a variety of information about pregnancy and parenting, as well as preemie resources. I hope you will find this website useful in your search for hope, comfort, strength and knowledge.
Feel free to contact me for any questions you may have, and please come back again for updates and photos.
God Bless
Tiffany N. Downing
- CHOLESTASIS OF PREGNANCY
- CYTOMEGALOVIRUS INFECTION (CMV)
- FETAL GROWTH RESRICTION
- PLACENTAL ABRUPTION
- PLACENTA ACCRETA
- PLACENTA PREVIA
- TIPPED UTERUS
- TOXOPLASMOSIS
- YEAST INFECTION
- The Little LightHouse - A Christian Developmental Center serving children with special needs from birth to age 7. (Taylor's School)
- Gods Little Ones - A great site to get a preemie doll made for your child.
- Parents Place - A fantastic site for resources for parenting.
- March Of Dimes - Great organization for helping babies with health problems.
- National Center For Learning Disabilities - ADD/ADHD.
- Reflux - Pediatric/Adolescent Gastroesophageal Reflux Assoc.
- Angel Babies - Great for dealing with the loss of a child.
- Medical Terms - Great reference for terms that you don't understand.
- Down Syndrome - The National Down Syndrome Society.
- Cerebral Palsy - A great site for understanding this condition.
- Hydrocephalus Assoc.- Great site for understanding Hydrocephalus.
- RSV - An overview of the most common causes of lower respiratory infections.
- ROPARD -The Association for Retinopathy of Prematurity.
- Nystagmus - Great site for understanding this movement of the eye.
- Children With Feeding Tubes - Includes information on tube feeding.
- Bronchopulmonary Dysplasia (BPD) - Information on this lung disease.
- United Cerebral Palsy - Another great CP site
- Lekotek - Helping children with special needs through toys and play.
- Learn Through Toys - Another great site to learn about & purchase educational toys.
Photos
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Taylor did pretty well today during her therapy session with Mynda, but she is still very tight in her left ankle and calf area. Mynda worked with Taylor walking up and down the stairs as well as in the house on the hardwood floors. We will be excited to see how her Botox injections go next Friday. We are thinking that since Taylor has discovered that she can walk by herself, that the help from this next round of botox will really step up her game!
MAY 1, 2009
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